Pillows for Research

I've started sewing pillows for research! I've been so touched by Progeria that I want to help. The pillows are 13" x 16" & come with a pillow case. I am sewing the cases in whatever fabric design the buyer chooses. I'm selling them for $9.00 each. Extra Cases are $5.00 each. 50% of the proceeds are going to Progeria Research.



These are perfectly sized for toddlers, travel, preschool, daycare, gifts. If you are interested in one let me know!

If you dont need a pillow but still want to help go to the Progeria Research Foundation website http://www.progeriaresearch.org/ways_to_donate.html

He's going to be Okay!!

Well we found out today that Ryan’s x-rays turned out fine!! So our next step is off to the Endocrinologist to look at what is the best course of action now.

This weekend was the most stressful JD & I have had in a long time.
The waiting was awful. I really don't think any parent should have to go through that.

JD & I now have a whole new respect for families living life with a child who has Progeria. It must be so hard sitting around just not knowing what tomorrow will bring. I have learned one thing though. These children truly are gifts from God. They are the most amazing people I have ever had a chance to learn about. I have had a little time to e-mail with a few families living this blessing daily. I discovered it is nothing to be afraid of because we are all going to die someday. So we can choose to either hide from it or live everyday to its fullest. These kids are the most beautiful people ever! Inside & out!

Our new adventure....with Ryan

Age: 21 months

Ryan went to the Dr. today for an ear recheck. While there I was discussing some things that had been bothering me about him.
Weight has always been one of his biggest issues. Today was no different. We went in & he weighed 18-lbs 10-oz. Which doesn't even get him close to the lines on the growth chart.
His height hadn't changed any from his 18 month appointment either.
Recently we started to notice changes in the veins in his hands, eye lids, temples & forehead.
His hair has started thinning also.

So we have today started a round of tests to try to find out what is going on.

His first test today was a set of x-rays. One of his hand, another of his chest. They want to I guess look at his bone development. He greatly enjoyed this though. He had a blast & didn't want to leave. He even though "Monkey" needed x-rays too!

We should hear back on Monday what they find. Then we will know our next course of action.

New Curtains

My Mom just taught me to sew...

"Sew" far I'm loving it!! Hehe...

JD & I decided to make some curtains for the boys room. We did their room in the Disney Cars theme, and haven't been able to find curtians so we made these, they turned out great!! They look professional and it was a first for us.



We took the picture right after they were finished. We had to hang them in the guest room at first because the boys were sleeping in their room.
They are hung using Disney Cars shower curtian hooks which are so cute!

Bath Buddies

Recently a cousin came to visit after dinner the boys were a little messy sooo.....

Look A-Likes

Ok, so I was looking for something the other day & came across a pic of JD when he was a baby. Later that day I was looking at stuff on my comp. & found a pic of Ryan that looked so much like JD's.

Soooo...I decided to start looking for more pic...these are the ones I found.

Making Cookies for Santa

Christmas Eve we made some chocolate chip cookies for Santa. Dylan & Ryan both had so much fun. It was great to be able to spend time together like that.

After the cookies were done we poured a glass of milk, Dylan & Ryan each chose a cookie for sant & put it on his plate - then went off to bed to dream of sugar plums...

The next morning Ryan was the first one up. He was so excited to go see if Santa had come. I had put a gate up in the hallway so they couldn't get into the living room without us. Ryan was wanting over the gate really bad so I told him he had to go get Daddy up first. He ran into our bedroom to JD saying "Daddy Up...up!" Whenever we made it to the living room the first thing they did was look on the cookie plate & in the milk cup to see if Santa had ate their cookies & drank their milk. They were so excited to see he had!